Ontlametse Phalatse, who had Progeria, a rare genetic disorder which causes premature ageing, has died

Expected by doctors to only live until the age of 14, Phalatse last month celebrated her 18th birthday.

She was the only known black female born with this disease.

“It is with great sadness [that we] inform you of the passing of our first lady, Ontlametse Ntlami Phalatse. She experienced breathing difficulties yesterday and was rushed to Hebron Clinic, then was referred to Dr George Mkhari,” a statement on Phalatse’s Facebook page read.

“The doctors did everything possible to save her, but unfortunately she passed on. She was surrounded by her mother, brother, family members and friends. The Phalatse family and Ontlametse Phalatse Trust would like to thank the nurses at Hebron Clinic and the staff at Dr George Mkhari for their compassion and their effort in trying to save her.  

“Our hearts are filled with pain and sadness, but Ontlametse, as we know her, would want us to carry on with her courageous spirit. We will miss you sorely, Tsontso, our first lady. May you find eternal peace among the angels. Rest in Peace Ntlami.”

Phalatse celebrated her birthday on 25 March. Two days before that she fulfilled her dream of meeting President Jacob Zuma before turning 18.

Zuma surprised Phalatse with a basket filled with flowers and a cake at his Mahlamba Ndlopfu Presidential House in Pretoria.

The president described her as “very sharp” and articulate.